Stockdale Family

Kayden, the healthiest Stockdale child, was born with Gastroschisis, in which the intestines are outside the body. He underwent two surgeries to repair the defect. In addition to EE, he also struggles daily with Obsessive Compulsive Disorder, Sensory Integration Disorder and Tourette's Syndrome. Jetty, now five, was diagnosed with EE after suffering through two years of pneumonia and various infections. Unable to eat food, he and his four-year-old sister, Baylee, are fed with the help of feeding tubes. Jetty is excited to begin kindergarten next year, but will likely need to be home-schooled due to the severity of his medical condition. Baylee's EE recently sent her to the emergency room to undergo a four-hour surgery after her feeding tube was changed incorrectly. She spent the next two weeks in ICU, fighting for her life. She still experiences infections that resulted from the surgery, and her disease continues to spread. The youngest Stockdale, two-year-old McKinnon, was born two months premature, weighing in at only three pounds. She was diagnosed with EE six months ago and doctors fear that the disease is spreading to her lungs, as it has with her brother, Jetty.